Wednesday, April 7, 2010

New ME/CFS Documentary

There's a new UK documentary about CFS: What About ME?

M.E.- Myalgic Encephalomyelitis, the UK name for Chronic Fatigue Syndrome. Sounds much scarier, doesn't it?

Their website is here:

On their list of people interviewed, I recognize Dr. Sarah Myhill, Dr. Charles Shepherd, and Anette Whittmore, founder of the Whittmore-Peterson Institute, which funded the groundbreaking XMRV study.

"People are suffering. But they are being told it’s all in the mind. Our aim is to investigate ME further, to put the plight of an ME sufferer in the public’s consciousness and to encourage further research and health policy reform. We hope to spread the word through this website which will have videos and podcasts on ME, short virals on the ME situation delivered multi-platform, a TV documentary aimed at a prime-time audience, a worldwide theatrical release and a docu-drama dramatizing an ME sufferer’s struggle, based on the novel “The State of Me,” by Nasim Marie Jafry."

I hope they succeed. The trailer looks promising. Please watch. They've really come at it from the right angle. I can't think of a more interesting story for a documentary, but of course, I'm biased.

"The major anger is the lack of belief."

"Don't pay attention to your own body. Don't pay attention to your own feelings. Don't pay attention to your own thoughts."


  1. I'm right there with you. I might be biased, but this is a story that needs to be shouted from the rooftops.

  2. oh gee...I must join the Bias Club, 'cause so am I. I'm so glad they're doing this film. And Allison, brave lady, I salute you for finding your path in spite of contracting this horrible illness at such an early age.

    Your blog is beautiful...I'm going to check out some of your relevant reading now. I'm really on a 'writings about illness' kick these days. If you would, I'd love to get your thoughts on my last blog post.

  3. Thanks deBergerac. Glad you noticed the relevant reading! Those books have really meant a lot to me. I will definitely check out your blog soon.

  4. I'm reblogging this, if you don't mind-- it looks brilliant and I can't wait until it comes out.

  5. I almost cried when I saw this trailer. The story is finally being told. I really thought I was alone with the whole getting ignored by doctors thing. But God, let's hope this is the first step in the right direction.