tag:blogger.com,1999:blog-8097016924982298387.post3495285650705122708..comments2024-02-20T00:23:59.355-08:00Comments on blog Wormwood: What I really doAlisonhttp://www.blogger.com/profile/07064893477629124444noreply@blogger.comBlogger11125tag:blogger.com,1999:blog-8097016924982298387.post-17048454855366912332013-10-01T23:13:27.398-07:002013-10-01T23:13:27.398-07:00I too just stumbled upon this from Pinterest. One ...I too just stumbled upon this from Pinterest. One more person here gets it! I've been battling this for over two years now, and I've already experienced how even the people who have seen what I go through the most don't take it seriously or understand it at all. To be told, "You could get better in a day if you wanted to," or to be told that you are only unwell because you want to be is just plain insulting to me. I agree that it needs a new name, but it also needs more awareness and understanding. Great post.Anonymousnoreply@blogger.comtag:blogger.com,1999:blog-8097016924982298387.post-43527654697927073592013-09-25T14:32:17.227-07:002013-09-25T14:32:17.227-07:00I just stumbled upon this from pinterest. I can fu...I just stumbled upon this from pinterest. I can fully sympathise. I've spent all year battling and basically either cfs or depression. My doctor has been amazing and it has been me fighting the diagnosis. I have just began treatment for depression as I went through a difficult year with a bereavement last year so signs in my mind point more to that. But I have had people make the oh I'm tired too, you just need a good sleep etc. <br /><br />I can't tell you how much I agree with the whole name of the condition.. It almost screams don't take me seriously. <br /><br />Thank you for showing such an accurate view<br />Missy xTake All Chances - Missyhttps://www.blogger.com/profile/17218156060625819660noreply@blogger.comtag:blogger.com,1999:blog-8097016924982298387.post-18705909757724314852012-10-07T13:44:25.051-07:002012-10-07T13:44:25.051-07:00I just came across your blog about CFS. I have bee...I just came across your blog about CFS. I have been told that I have fibromyalgia and I am wondering what the difference is. I feel exactly like you described. I am just starting out trying to figure out what is wrong with me and how to live any sort of life. I have been trampled by this disease for over 10 years but I keep hoping that I will get better with each passing day I lay in my bed and feel I am a failure to my family and all those around me.Anonymousnoreply@blogger.comtag:blogger.com,1999:blog-8097016924982298387.post-29991400602377229772012-04-29T15:16:46.117-07:002012-04-29T15:16:46.117-07:00Ok...fibro-brain strikes again. I found you throu...Ok...fibro-brain strikes again. I found you through one of my followers. I am embarrassed a second time for trying to keep people straight. <br /><br />Nonetheless, I am so happy I found this blog and hope you can forgive my blooper. The writing is both impressive and to the point yet completely understandable. The examples given are spot on. Finally, I want to cry but I want to laugh. <br /><br />Incredibly great. I'm so happy to have found this site and do hope you can check mine out, a definite work in progress, started at the end of February, though I've had this DD for 37 years.....irene speakshttps://www.blogger.com/profile/15306297235592610766noreply@blogger.comtag:blogger.com,1999:blog-8097016924982298387.post-4024669053389494382012-04-29T15:07:30.476-07:002012-04-29T15:07:30.476-07:00Alison, brilliant. And to think you were following...Alison, brilliant. And to think you were following my blog for so long without me somehow finding your blog! I really am disgraceful w/ the internet. I am really enjoying what I see here. Excellent job and *I* understand you, I hope you know!irene speakshttps://www.blogger.com/profile/15306297235592610766noreply@blogger.comtag:blogger.com,1999:blog-8097016924982298387.post-89688770374085834502012-04-29T15:03:18.408-07:002012-04-29T15:03:18.408-07:00VERY well said. This is my first read of this tru...VERY well said. This is my first read of this truly WONDERFUL blog and I wanted to "walk" around first before writing how impressed I am, but I'm afraid that "Nassim" has done a better job than I could, certainly in fewer words! Thanks!irene speakshttps://www.blogger.com/profile/15306297235592610766noreply@blogger.comtag:blogger.com,1999:blog-8097016924982298387.post-83999569702665688322012-04-03T10:09:11.544-07:002012-04-03T10:09:11.544-07:00I just want to say, you ROCK! Excellent work! Arti...I just want to say, you ROCK! Excellent work! Articulate explanations! And more validation for me and what I go through, thanks!Anonymousnoreply@blogger.comtag:blogger.com,1999:blog-8097016924982298387.post-51145071562289057682012-03-07T18:50:07.519-08:002012-03-07T18:50:07.519-08:00Thanks Nassim! I've skirted around saying ME f...Thanks Nassim! I've skirted around saying ME for various reasons, from silly ones like never being able to remember how to actually say the words "myalgic encephalomyelitis", to not wanting to sound like an American using Britishisms. But also because no neurologist has ever diagnosed me with anything. I don't know why I'm hung up on that though. Any name is better than Chronic Fatigue Syndrome.Alisonhttps://www.blogger.com/profile/07064893477629124444noreply@blogger.comtag:blogger.com,1999:blog-8097016924982298387.post-48958875353614258002012-03-01T10:33:02.548-08:002012-03-01T10:33:02.548-08:00Hey Alison, You don't do nothing! You write th...Hey Alison, You don't do nothing! You write this blog for a start, and you have a lovely way with words, I *always* enjoy your posts, even though I am jaded by most ME blogs. In my opinion, the sooner we get back to the name ME and banish CFS - for the illness you and I both have - we might get somewhere. This conflation of neuroimmune illness with fatigue disorder does *no one* any good. But disentangling those who have ME from those who don't will only happen when universal criteria are agreed upon and adopted. May be easier said than done.nmjhttps://www.blogger.com/profile/05477643084619789093noreply@blogger.comtag:blogger.com,1999:blog-8097016924982298387.post-88223339161125023722012-02-17T12:40:11.315-08:002012-02-17T12:40:11.315-08:00It's funny, the society frame was the first on...It's funny, the society frame was the first one that came to me. I'm glad you got it after you read the explanation but my old design teacher would still say I failed. Oh well! Good to know people can relate to the parents one. It's tricky.Alisonhttps://www.blogger.com/profile/07064893477629124444noreply@blogger.comtag:blogger.com,1999:blog-8097016924982298387.post-92091906513245174892012-02-16T19:18:08.606-08:002012-02-16T19:18:08.606-08:00I didn't get the first frame (the society one)...I didn't get the first frame (the society one) until I read your explanation, but now I totally get it. I can so relate to all of this. I thought leaving the last frame blank was totally appropriate.<br /><br />I just wanted to let you know that here's another person in the same situation.<br /><br />I had never picked up on visiting my parents in the way you mentioned until you mentioned it. They know I need to rest and they mind my son when I'm visiting so I can rest. But when I'm not "officially resting" they expect me to do more than perhaps I should because they remember the me that used to do things, and don't see the me at home who does very little at all.Kerryhttps://www.blogger.com/profile/01829070558793881064noreply@blogger.com